eHealth: what is needed at the policy level? New special issue from Policy and Internet

by Rik Crutzen 24/05/2012

Policymakers wishing to promote greater choice and control among health system users should take account of the limits to empowerment as well as barriers to participation.

by Rik Crutzen 24/05/2012

The explosive growth of the Internet and its omnipresence in people’s daily lives has facilitated a shift in information seeking on health, with the Internet now a key information source for the general public, patients, and health professionals. The Internet also has obvious potential to drive major changes in the organisation and delivery of health services efforts, and many initiatives are harnessing technology to support user empowerment. For example, current health reforms in England are leading to a fragmented, marketised National Health Service (NHS), where competitive choice designed to drive quality improvement and efficiency savings is informed by transparency and patient experiences, and with the notion of an empowered health consumer at its centre. Is this aim of achieving user empowerment realistic? In their examination of health queries submitted to the NHS Direct online enquiry service, John Powell and Sharon Boden find that while patient empowerment does occur in the use of online health services, it is constrained and context dependent. Policymakers wishing to promote greater choice and control among health system users should therefore take account of the limits to empowerment as well as barriers to participation. The Dutch government’s online public national health and care portal similarly aims to facilitate consumer decision-making behaviour and increasing transparency and accountability to improve quality of care and functioning of health markets. Interestingly, Hans Ossebaard, Lisette van Gemert-Pijnen and Erwin Seydel find the influence of the Dutch portal on choice behaviour, awareness, and empowerment of users to actually be small. The Internet is often discussed in terms of empowering (or even endangering) patients through broadening of access to medical and health-related information, but there is evidence that concerns about serious negative effects of using the Internet for health information may be ill-founded. The cancer patients in the study by Alison Chapple, Julie Evans and Sue Ziebland gave few examples of harm from using the Internet or of damage caused to their relationships…

Economics, Governance & Security

Personal data protection vs the digital economy? OII policy forum considers our digital footprints

by Vicki Nash 03/02/2011 1 Comment

The fact that data collection is now so routine and so extensive should make us question whether the regulatory system governing data collection, storage and use is fit for purpose.

by Vicki Nash 03/02/2011 1 Comment

Catching a bus, picking up some groceries, calling home to check on the children—all simple, seemingly private activities that characterise many people’s end to the working day. Yet each of these activities leaves a data trail that enables companies, even the state, to track the most mundane aspects of our lives. Add to this the range and quantity of personal data that many of us willingly post online on our blogs, Facebook walls or Google docs, and it is clear that the trail of digital footprints we leave is long and hard to erase. Even if in most cases, this data is only likely to be used in an anonymised and aggregated form to identify trends in transport or shopping patterns, or to personalise the Internet services available to us, the fact that its collection is now so routine and so extensive should make us question whether the regulatory system governing data collection, storage and use is fit for purpose. A forthcoming OII policy forum on Tracing the Policy Implications of the Future Digital Economy (16 Feb) will consider this question, bringing together leading academics from across several disciplines with policy-makers and industry experts. This is a topic which the OII is well-placed to address. Ian Brown’s Privacy Values Network project addresses a major knowledge gap, measuring the various costs and benefits to individuals of handing over data in different contexts, as without this we simply don’t know how much people value their privacy (or indeed understand its limits). The last Oxford Internet Survey (OxIS) rather surprisingly showed that in 2009 people were significantly less concerned about privacy online in the UK than in previous years (45% of all those surveyed in 2009 against 66% in 2007); we wait to see whether this finding is repeated when OxIS 2011 goes into the field next month. Our faculty also have much to say about the adequacy (or otherwise) of the regulatory framework:…

Conferences

Internet, Politics, Policy 2010: Closing keynote by Viktor Mayer-Schönberger

by Professor Tobias Escher 17/09/2010

What he sees at stake is power because of the permanent threat of our activities are being watched by others—not necessarily now but possibly even in the future—can result in altering our behaviour today.

by Professor Tobias Escher 17/09/2010

Our two-day conference is coming to a close with a keynote by Viktor Mayer-Schönberger who is soon to be joining the faculty of the Oxford Internet Institute as Professor of Internet Governance and Regulation. Viktor talked about the theme of his recent book “Delete: The Virtue of Forgetting in the Digital Age” (a webcast of this keynote will be available soon on the OII website but you can also listen to a previous talk here). It touches on many of the recent debates about information that has been published on the web in some context and which might suddenly come back to us in a completely different context, e.g. when applying for a job and being confronted with some drunken picture of us obtained from Facebook. Viktor puts that into a broad perspective, contrasting the two themes of “forgetting” and “remembering”. He convincingly argues how for most of human history, forgetting has been the default. This state of affairs has experienced quite a dramatic change with the advances of the computer technology, data storage and information retrieval technologies available on a global information infrastructure. Now remembering is the default as most of the information stored digitally is available forever and in multiple places. What he sees at stake is power because of the permanent threat of our activities are being watched by others—not necessarily now but possibly even in the future—can result in altering our behaviour today. What is more, he says that without forgetting it is hard for us to forgive as we deny us and others the possibility to change. No matter to what degree you are prepared to follow the argument, the most intriguing question is how the current state of remembering could be changed to forgetting. Viktor discusses a number of ideas that pose no real solution: privacy rights – don’t go very far in changing actual behaviour information ecology – the idea to store only as much…

Environment, Publications

New issue of Policy and Internet (2,2)

by David Sutcliffe 19/08/2010

We are pleased to present six articles which investigate the role of the Internet in a wide range of policy processes and sectors.

by David Sutcliffe 19/08/2010

Welcome to the second issue of Policy & Internet for 2010! We are pleased to present six articles which investigate the role of the Internet in a wide range of policy processes and sectors: agenda setting in online and traditional media; environmental policy networks; online deliberation on climate change; data protection and privacy; net neutrality; and digital inclusion/exclusion. You may access any of the articles below at no charge. Helen Margetts: Editorial Ben Sayre, Leticia Bode, Dhavan Shah, Dave Wilcox, and Chirag Shah: Agenda Setting in a Digital Age: Tracking Attention to California Proposition 8 in Social Media, Online News and Conventional News Kathleen McNutt and Adam Wellstead: Virtual Policy Networks in Forestry and Climate Change in the U.S. and Canada: Government Nodality, Internationalisation and Actor Complexity Julien Talpin and Stéphanie Wojcik: Deliberating Environmental Policy Issues: Comparing the Learning Potential of Online and Face-To-Face Discussions on Climate Change Andrew A. Adams, Kiyoshi Murata, and Yohko Orito: The Development of Japanese Data Protection Scott Jordan: The Application of Net Neutrality to Wireless Networks Based on Network Architecture Alison Powell, Amelia Bryne, and Dharma Dailey: The Essential Internet: Digital Exclusion in Low-Income American Communities