Health, Methods, Social Data Science, Wellbeing

Facts and figures or prayers and hugs: how people with different health conditions support each other online

by admin 07/03/2016

Online support groups are one of the major ways in which the Internet has fundamentally changed how people experience health and health care.

by admin 07/03/2016

Online forums are important means of people living with health conditions to obtain both emotional and informational support from this in a similar situation. Pictured: The Alzheimer Society of B.C. unveiled three life-size ice sculptures depicting important moments in life. The ice sculptures will melt, representing the fading of life memories on the dementia journey. Image: bcgovphotos (Flickr)

Online support groups are being used increasingly by individuals who suffer from a wide range of medical conditions. OII DPhil Student Ulrike Deetjen’s recent article with John Powell, Informational and emotional elements in online support groups: a Bayesian approach to large-scale content analysis uses machine learning to examine the role of online support groups in the healthcare process. They categorise 40,000 online posts from one of the most well-used forums to show how users with different conditions receive different types of support. Online support groups are one of the major ways in which the Internet has fundamentally changed how people experience health and health care. They provide a platform for health discussions formerly restricted by time and place, enable individuals to connect with others in similar situations, and facilitate open, anonymous communication. Previous studies have identified that individuals primarily obtain two kinds of support from online support groups: informational (for example, advice on treatments, medication, symptom relief, and diet) and emotional (for example, receiving encouragement, being told they are in others’ prayers, receiving “hugs”, or being told that they are not alone). However, existing research has been limited as it has often used hand-coded qualitative approaches to contrast both forms of support, thereby only examining relatively few posts (<1,000) for one or two conditions. In contrast, our research employed a machine-learning approach suitable for uncovering patterns in “big data”. Using this method a computer (which initially has no knowledge of online support groups) is given examples of informational and emotional posts (2,000 examples in our study). It then “learns” what words are associated with each category (emotional: prayers, sorry, hugs, glad, thoughts, deal, welcome, thank, god, loved, strength, alone, support, wonderful, sending; informational: effects, started, weight, blood, eating, drink, dose, night, recently, taking, side, using, twice, meal). The computer then uses this knowledge to assess new posts, and decide whether they contain more emotional or informational support. With this approach we were able to determine the emotional or informational content of 40,000…

Development

Examining the data-driven value chains that are changing Rwanda’s tea sector

by Chris Foster 16/02/2015

What role is new Internet connectivity playing in changing these sectors—which are often seen as slow to adopt new technologies?

by Chris Foster 16/02/2015

Behind the material movement that takes tea from the slopes of Rwanda’s ‘thousand hills’ to a box on a shelf in Tesco, is a growing set of less visible digital data flows. Image by pasunejen.

Production of export commodity goods like tea, coffee and chocolate is an important contributor to economies in Africa. Producers sell their goods into international markets, with the final products being sold in supermarkets, here in the UK and throughout the world. So what role is new Internet connectivity playing in changing these sectors—which are often seen as slow to adopt new technologies? As part of our work examining the impacts of growing Internet connectivity and new digital ICTs in East Africa we explored uses of the Internet and ICTs in the tea sector in Rwanda. Tea is a sector with well-established practices and relations in the region, so we were curious if ICT might be changing it. Of course, one cannot ignore the movements of material goods when you research the tea sector. Tea is Rwanda’s main export by value, and in 2012 it moved over 21,000 tonnes of tea, accruing around $56m in value. During our fieldwork we interviewed cooperatives in remote offices surrounded by tea plantations in the temperate Southern highlands, tea processors in noisy tea factories heavy with the overpowering smell of fermenting tea leaves, and tea buyers and sellers surrounded by corridors piled high with sacks of tea. But behind the material movement that takes tea from the slopes of Rwanda’s ‘thousand hills’ to a box on a shelf in Tesco, is a growing set of less visible digital data flows. Whilst the adoption of digital technologies is not comprehensive in the Rwandan tea sector (with, for example, very low Internet use among tea growers), we did find growing use of the Internet and ICTs. More importantly, where they were present, digital flows of information (such as tea-batch tracking, logistics and sales prices) were increasingly important to the ability of firms to improve production and ultimately to increase their profit share from tea. We have termed this a ‘data-driven value chain’ to highlight that these new…

Development

Why haven’t digital platforms transformed firms in developing countries? The Rwandan tourism sector explored

by Chris Foster 10/02/2015

Have Rwandan firms been able to access online platforms? What impact has access to these platforms had on firms?

by Chris Foster 10/02/2015

Tourism is becoming an increasingly important contributor to Rwanda’s economy. Image of Homo sapiens and Gorilla beringei beringei meeting in Rwanda's Volcanoes National Park by Andries3.

One of the great hopes for new Internet connectivity in the developing world is that it will allow those in developing countries who offer products and services to link to and profit from global customers. With the landing of undersea Internet infrastructure in East Africa, there have been hopes that as firms begin to use the Internet more extensively that improved links to markets will positively impact them. Central to enabling new customer transactions is the emergence of platforms—digital services, websites and online exchanges—that allow more direct customer-producer interactions to occur. As part of our work exploring the impacts of growing internet connectivity and digital ICTs in East Africa, we wanted to explore how digital platforms were affecting Rwandan firms. Have Rwandan firms been able to access online platforms? What impact has access to these platforms had on firms? Tourism is becoming an increasingly important contributor to Rwanda’s economy, with 3.1% direct contribution to GDP, and representing 7% of employment. Tourism is typically focused on affluent international tourists who come to explore the wildlife of the country, most notably as the most accessible location to see the mountain gorilla. Rwandan policy makers see tourism as a potential area for expansion, and new connectivity could be one key driver in making the country more accessible to customers. Tourist service providers in Rwanda have a very high Internet adoption, and even the smallest hotel or tour agency is likely to have at least one mobile Internet-connected laptop. Many of the global platforms also have a presence in the region: online travel agents such as Expedia and Hotels.com work with Rwandan hotels, common social media used by tourists such as TripAdvisor and Facebook are also well-known, and firms have been encouraged by the government to integrate into payment platforms like Visa. So, in the case of Rwandan tourism, Internet connectivity, Internet access and sector-wide platforms are certainly available for tourism firms. During our…

Economics, Social Data Science

Gender gaps in virtual economies: are there virtual ‘pink’ and ‘blue’ collar occupations?

by Vili Lehdonvirta 15/01/2015

Men and women tend to be rewarded differently for the same amount of work. Since online economies are such a big part of many people’s lives today, we wanted to know if this holds true in those economies as well.

by Vili Lehdonvirta 15/01/2015

She could end up earning 11 percent less than her male colleagues .. Image from EVE Online by zcar.300.

Ed: Firstly, what is a ‘virtual’ economy? And what exactly are people earning or exchanging in these online environments? Vili: A virtual economy is an economy that revolves around artificially scarce virtual markers, such as Facebook likes or, in this case, virtual items and currencies in an online game. A lot of what we do online today is rewarded with such virtual wealth instead of, say, money. Ed: In terms of ‘virtual earning power’ what was the relationship between character gender and user gender? Vili: We know that in national economies, men and women tend to be rewarded differently for the same amount of work; men tend to earn more than women. Since online economies are such a big part of many people’s lives today, we wanted to know if this holds true in those economies as well. Looking at the virtual economies of two massively-multiplayer online games (MMOG), we found that there are indeed some gender differences in how much virtual wealth players accumulate within the same number of hours played. In one game, EVE Online, male players were on average 11 percent wealthier than female players of the same age, character skill level, and time spent playing. We believe that this finding is explained at least in part by the fact that male and female players tend to favour different activities within the game worlds, what we call “virtual pink and blue collar occupations”. In national economies, this is called occupational segregation: jobs perceived as suitable for men are rewarded differently from jobs perceived as suitable for women, resulting in a gender earnings gap. However, in another game, EverQuest II, we found that male and female players were approximately equally wealthy. This reflects the fact that games differ in what kind of activities they reward. Some provide a better economic return on fighting and exploring, while others make it more profitable to engage in trading and building social…

Education, Social Data Science

What are the limitations of learning at scale? Investigating information diffusion and network vulnerability in MOOCs

by Rebecca Eynon 21/10/2014

while a lot is known about the mechanics of group learning in smaller and traditionally organised online classrooms, fewer studies have examined participant interactions when learning “at scale.”

by Rebecca Eynon 21/10/2014

Millions of people worldwide are currently enrolled in courses provided on large-scale learning platforms (aka ‘MOOCs’), typically collaborating in online discussion forums with thousands of peers. Current learning theory emphasises the importance of this group interaction for cognition. However, while a lot is known about the mechanics of group learning in smaller and traditionally organised online classrooms, fewer studies have examined participant interactions when learning “at scale.” Some studies have used clickstream data to trace participant behaviour; even predicting dropouts based on their engagement patterns. However, many questions remain about the characteristics of group interactions in these courses, highlighting the need to understand whether—and how—MOOCs allow for deep and meaningful learning by facilitating significant interactions. But what constitutes a “significant” learning interaction? In large-scale MOOC forums, with socio-culturally diverse learners with different motivations for participating, this is a non-trivial problem. MOOCs are best defined as “non-formal” learning spaces, where learners pick and choose how (and if) they interact. This kind of group membership, together with the short-term nature of these courses, means that relatively weak inter-personal relationships are likely. Many of the tens of thousands of interactions in the forum may have little relevance to the learning process. So can we actually define the underlying network of significant interactions? Only once we have done this can we explore firstly how information flows through the forums, and secondly the robustness of those interaction networks: in short, the effectiveness of the platform design for supporting group learning at scale. To explore these questions, we analysed data from 167,000 students registered on two business MOOCs offered on the Coursera platform. Almost 8000 students contributed around 30,000 discussion posts over the six weeks of the courses; almost 30,000 students viewed at least one discussion thread, totalling 321,769 discussion thread views. We first modelled these communications as a social network, with nodes representing students who posted in the discussion forums, and edges (ie links) indicating…

Politics & Government

The life and death of political news: using online data to measure the impact of the audience agenda

by Jonathan Bright 09/09/2014

Editors must now decide not only what to publish and where, but how long it should remain prominent and visible to the audience on the front page of the news website.

by Jonathan Bright 09/09/2014

Image of the Telegraph's state of the art "hub and spoke" newsroom layout by David Sim.

The political agenda has always been shaped by what the news media decide to publish—through their ability to broadcast to large, loyal audiences in a sustained manner, news editors have the ability to shape ‘political reality’ by deciding what is important to report. Traditionally, journalists pass to their editors from a pool of potential stories; editors then choose which stories to publish. However, with the increasing importance of online news, editors must now decide not only what to publish and where, but how long it should remain prominent and visible to the audience on the front page of the news website. The question of how much influence the audience has in these decisions has always been ambiguous. While in theory we might expect journalists to be attentive to readers, journalism has also been characterised as a profession with a “deliberate…ignorance of audience wants” (Anderson, 2011b). This ‘anti-populism’ is still often portrayed as an important journalistic virtue, in the context of telling people what they need to hear, rather than what they want to hear. Recently, however, attention has been turning to the potential impact that online audience metrics are having on journalism’s “deliberate ignorance”. Online publishing provides a huge amount of information to editors about visitor numbers, visit frequency, and what visitors choose to read and how long they spend reading it. Online editors now have detailed information about what articles are popular almost as soon as they are published, with these statistics frequently displayed prominently in the newsroom. The rise of audience metrics has created concern both within the journalistic profession and academia, as part of a broader set of concerns about the way journalism is changing online. Many have expressed concern about a ‘culture of click’, whereby important but unexciting stories make way for more attention grabbing pieces, and editorial judgments are overridden by traffic statistics. At a time when media business models are under great strain, the…

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